Hope in a Rare Case: The Fight Against CTNNB1 Syndrome CTNNB1 syndrome is a genetic disorder that affects fewer than 40 children in Canada.
For families like Harper Tanton's, it has been a long and difficult journey searching for answers.
Initially misdiagnosed with cerebral palsy, Harper's parents, Tara and Scott Tanton, refused to accept the diagnosis and dug deeper into medical literature.